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Curry Chat => Lets Talk Curry => Topic started by: Geoffbrick on June 20, 2020, 09:23 AM

Title: Celiac disease
Post by: Geoffbrick on June 20, 2020, 09:23 AM
Hi folks,been away for all sorts of reasons as you'll see.
Were coping with the big C all sorts of arthritis and operations on broken bones,now another member of the family has Coeliac disease.
Since hes a curry lover as all of us,an looking for recipes to stop him drooling over our curries whilst eating his GF bread.
Help would be appreciated,thanks.
Geoff
Title: Re: Celiac disease
Post by: Peripatetic Phil on June 20, 2020, 11:16 AM
Very sorry to learn of all the health problems, Geoff, especially the big C, but no direct experience of cooking for someone with c
Title: Re: Celiac disease
Post by: bhamcurry on June 20, 2020, 03:03 PM
Ho Geoff, I don't have Ceoliac but I am allergic to wheat. I have to read every label - spices and spice blends are often cut with flour as an anti caking / bulking agent.

The easiest takeaway (sorry) from my experiences is to read all labels, and to equip yourself with the names of things derived from gluten containing grains.

There's also the issue of "cross reactions" to things which do not contain gluten, but still trigger the immune system response as if they were. This is a huge subject that I cannot give any advice on, it's just something I have read about.

So long as you make your own spice blends, from whole spices, and use a dedicated grinder that is only ever used to grind whole spices, you should be able to avoid triggering any health nasties for the Ceoliac in your life.

Good luck.
Title: Re: Celiac disease
Post by: Geoffbrick on June 20, 2020, 09:50 PM
Hi bham curry,thanks for your pretty informed reply,haven't really thought about checking the spices to that degree.I think we've been pretty lucky in preparing his curries at the moment.The diagnosis is only three months new,so we're scratching around at the moment and have had to buy GF free curries from the shops,which in this present time is quite difficult.
Have seen a few recipes which will have to have a go at,they look quite interesting a d well informed too.
Cheers for the information Geoff
Title: Re: Celiac disease
Post by: Geoffbrick on June 20, 2020, 10:12 PM
Hi Phil,good to see you still up and running,thanks for your interest.It's all rather new,diagnosis was only three months ago.
In this present climate it's rather difficult to purchase what is needed,and have had to settle mainly for GF goods and hope.Any information I can get will let you know,thanks.
Geoff
Title: Re: Celiac disease
Post by: bhamcurry on June 20, 2020, 10:45 PM
Hi bham curry,thanks for your pretty informed reply,haven't really thought about checking the spices to that degree.I think we've been pretty lucky in preparing his curries at the moment.The diagnosis is only three months new,so we're scratching around at the moment and have had to buy GF free curries from the shops,which in this present time is quite difficult.
Have seen a few recipes which will have to have a go at,they look quite interesting a d well informed too.
Cheers for the information Geoff


I'm coming up to 2 years since I discovered my wheat allergy. Just this month I learned that Pizza flavour Pringles have "wheat starch" listed as their last ingredient, and that is enough to trigger my allergy  :sad: so it's still a learning process.
Title: Re: Celiac disease
Post by: Geoffbrick on July 26, 2020, 09:36 PM
Hi Bham curry,your  wheat allergy sounds about unbearable as Celiacs,you have to be so careful, don't you ?
We're still waiting from the hospital dietician for what he can eat to bulk him up Geoff
Title: Re: Celiac disease
Post by: Geoffbrick on July 26, 2020, 09:45 PM
Hi Phil,we are awaiting word from his hospital dietician still,I think they have other more pressing currencies at present!?
Will keep you posted Geoff
Title: Re: Celiac disease
Post by: Peripatetic Phil on July 26, 2020, 10:57 PM
OK, thanks for the update Geoff, and look forward to hearing more from you when the dietician can find the time to advise.
** Phil.
Title: Re: Celiac disease
Post by: bhamcurry on July 30, 2020, 05:11 PM
Hi Bham curry,your  wheat allergy sounds about unbearable as Celiacs,you have to be so careful, don't you ?
We're still waiting from the hospital dietician for what he can eat to bulk him up Geoff

my consolation is that I can still drink beer, albeit nothing made with wheat or rye! I was already cooking most of our food from scratch, the allergy just reinforced that and removed a couple of props from my food stash (no more busting open a packet of pasta for a lazy dinner ;))
Title: Re: Celiac disease
Post by: livo on August 07, 2022, 11:23 AM
I recalled reading this a few years back and found it again, even though the thread title is spelled incorrectly. Can that be remedied?

I have been struggling with a "respiratory" or "allergic" problem for over 15 years now.  Nothing serious and just an annoyance really but it has been getting progressively worse.  I've been to allergy specialists, ENT specialists, had cameras fed up my nose and down my throat.  Nothing!!  I was told in the early days it was GORD or GARD.  My GP at the time (no I don't go to them anymore) tried to put me on Nexium (bad stuff) and suggested I sip water every time I had a feeling of needing to throat clear or cough.  I would have drowned within a week.  The ENT told me I most likely have Chronic Globus.  This condition used to be called Globus Hystericus, meaning it was a psychosomatic condition created in the head and not really a physical ailment.  (utter rubbish)  When I asked him what to do about it, he looked at me with blank eyes and shrugged his shoulders.  (utter BS at the cost of Specialist medical fees).  When I told him I'd already been to an allergy specialist he straight out declared it was not an allergy. The allergy specialist had been inconclusive, so what could I say?

Anyway, a few distinct episodes have occurred over the last few years, where I basically had an immediate reaction to eating certain foods.  A few years back on a long road trip it was a Bacon & Egg Roll (bread).  More recently I've reacted immediately to fast food Burgers (bread) and in particular Brioche buns.  Possibly wheat or other preservatives or food additives.  So I decided about 2 months ago to stop eating wheat products.  Not completely, but no bread at all and seriously watching everything I eat and paying attention to the symptoms and speed of onset after eating certain things.

My wife and I have come to the conclusion, I'm allergic to wheat.  Not necessarily gluten intolerance (ie: coeliac) but if I eat wheat based snacks, bread, toast, buns, etc (naan, oh no!!!),  I pretty quickly have a serious problem in my throat.

This is not psychosomatic.  It is a fact that I have developed an intolerance to wheat products or the other ingredients included in them.  I know realise how much of the stuff I ate.  Cutting down to next to none has been a challenge.  It's very difficult in fact, so I feel for those who have full blown coeliac condition.  I guess for me now it is just working out how much I can have on the rare occasion.  Chickpea flour rotis (still with wheat flour) over the last few curry nights have been tolerable.

I can't imagine the misery of not having real pizza on our next pizza night.   :tears: :tears: :tears:
Title: Re: Celiac disease
Post by: tempest63 on August 07, 2022, 04:55 PM
Hi Livo, sorry to hear of your problems and I sincerely hope you find an agreeable way around your dietary issues. I have had Crohn’s disease for 50 years and am currently going through the worse flare up since 1987. I have always suspected that there is a food trigger but have never nailed it down. Shop bought bread bloats me and makes me rough, but home made doesn’t.
I have always made our food from scratch to eliminate a lot of the chemicals that go in the processed stuff.Today I cooked a braised Thai pork dish that we had with Jasmine rice, a yellow Thai curry which is in the fridge for tomorrow night and a 500g bag of dried chickpeas for a few dishes during the week.
Avoiding processed food helps keep my condition on an even keel but it doesn’t guarantee that I will avoid all effects of the illness.
I wish you well with your food journey!
Title: Re: Celiac disease
Post by: livo on August 07, 2022, 10:08 PM
Thanks T63.  I still have symptoms but avoiding bread and pasta has made a noticeable difference. On a few occasions recently, when I have eaten something flour based, I have had pretty quick reactions so there must be some correlation.  I used to bake bread so I'll give it a try.  My wife has been insisting I only eat gluten free which is really quite a challenge.  It's in everything.

I feel for you as well. I used to work with a lady who had your condition.

Another thing is that I've recently had discussions with 2 acquaintances (a friend and an extended family member), both males and the same approximate age as myself.  They are not known to each other.  Both had recently been experiencing health difficulties with digestion, lethargy, exhaustion at work, headaches and prolonged periods of "brain fog".  Both have now been diagnosed with LGS or leaky gut syndrome.  Drastic changes to diet has helped both of them.

Is it just an age thing for all of us in our 60s or is our food causing these problems?
Title: Re: Celiac disease
Post by: bhamcurry on August 08, 2022, 04:07 AM
honestly, livo, a lot of current health Big Issues could be resolved by changing diets. I don't mean "go on a diet", I mean do a 28 day "clean diet" where you cut out all potential allergens, then slowly re-add them on a schedule - this allows you to track down what it is that is triggering your reaction.
Title: Re: Celiac disease
Post by: tempest63 on August 08, 2022, 09:30 AM
Thanks T63.  I still have symptoms but avoiding bread and pasta has made a noticeable difference. On a few occasions recently, when I have eaten something flour based, I have had pretty quick reactions so there must be some correlation.  I used to bake bread so I'll give it a try.  My wife has been insisting I only eat gluten free which is really quite a challenge.  It's in everything.

I feel for you as well. I used to work with a lady who had your condition.

Another thing is that I've recently had discussions with 2 acquaintances (a friend and an extended family member), both males and the same approximate age as myself.  They are not known to each other.  Both had recently been experiencing health difficulties with digestion, lethargy, exhaustion at work, headaches and prolonged periods of "brain fog".  Both have now been diagnosed with LGS or leaky gut syndrome.  Drastic changes to diet has helped both of them.

Is it just an age thing for all of us in our 60s or is our food causing these problems?

Sounds like your associates may need to look at the Sibo diet if they have leaky gut. Something I have considered on more than one occasion but have never got round to implementing it.
Title: Re: Celiac disease
Post by: livo on August 08, 2022, 10:16 AM
The surprising recommendation made to both of them was to stop eating fruit.  Full of sugar.  Eat low GI food whenever possible among other things.  They both essentially stopped drinking any alcohol, eating chocolate, carbs etc.  Life without beer or wine???  No chocolate???  Is it really worth it?   :confusing3:

Here I am learning to cook authentic Balti and I can't cook fresh naan!!!  What's the point?   :angry:
Title: Re: Celiac disease
Post by: tempest63 on August 08, 2022, 04:28 PM
The surprising recommendation made to both of them was to stop eating fruit.  Full of sugar.  Eat low GI food whenever possible among other things.  They both essentially stopped drinking any alcohol, eating chocolate, carbs etc.  Life without beer or wine???  No chocolate???  Is it really worth it?   :confusing3:

Here I am learning to cook authentic Balti and I can't cook fresh naan!!!  What's the point?   :angry:

Could be to limit the amount of sugar that would be feeding any bacterial overgrowth in the gut.

As I mentioned earlier I never tried the Sibo diet but from memory you follow it for a period of time before reintroducing foods previously excluded during the diet.